
Photo: DINA RUDICK/GLOBE STAFF. Ian Rutherford, 2, shares a liver with an 18-year-old boy. They received it from the same deceased donor in May 2012.
Spreads scarce organs to more children with rare disease
When Emma Lowney was diagnosed with jaundice a day after her birth last December, her parents assumed it would quickly vanish on its own like it did in Emma’s older brother, Henry. Instead, Emma turned out to have a rare life-threatening liver disease called biliary atresia, and she recently celebrated her first birthday waiting for a liver transplant.
“The odds of Emma making it to age 2 without a transplant are very low,” said Dr. Maureen Jonas, the girl’s doctor and medical director of the liver transplant program at Boston Children’s Hospital.
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